Oinions

My onions

Potato box

Putting third run on and more dirt. Looking good!

Summer

Love summer

Garden

Second flower bed done!

Having fun

Diarrhea

Loose Stool?

If your child has loose stool, in our case the result of surgeries on intestines or colon,

There is a product called FIBER powder, you can mix it into juice or food and it will help firm up the 

bowels.The directions on the fiber are from 6 years and up. It is very safe and effective. now we still do not 

have a normal firm stool but we are getting there.

this powder runs around $12.00 to $15.00 dollars and it is a large container of 16 oz. This also is sold at Walmart.

Always check with your Doctor first.

Cure for Diaper Rash

The cure for EXTREME diaper rash

Parents, Care Takers and Children hurt no more!

The paste above was our cure and a few careful steps. This problem seems to be very widespread. I actually take Nolan back to the Doctor that preformed the surgery on his rectum.

There are at least two Doctors that preform this surgery that I am aware of there and I will tell them about my discovery, of no oil glands as a result of the cutting and repair on the rectum!

This is so other Children and Parents suffer no longer. I think that Doctors just see the big picture in these situations so if we can help an inform each other even a Doctor we are serving mankind as we should! I know our Doctor will be receptive of this knowledge because he ran numerous tests on Nolan for this problem. Tests were; re-flux, lactose, antibiotics, I cant even remember how many and they went on for years! He and I communicate very well and he has been with Nolan from birth and preformed most of his surgeries.

How to use:this method is utmost important or it will not work!
Use the smoothest wipes or wash rags to clean bottom, gently, do not rub. Completely dry bottom!!! this will not work if bottom is not dry! I pat dry then fan with the new diaper! then use a generous amount of paste on bottom. In a week or two the problem is no more!!! 
Note: some wipes seem like they have fibers in them and a lot of these are name brands, diapers as well! We like the dollars store brand.
Good luck and I hope I have helped.
These creams are at Walmart by the pharmacy and cost $10.00 to $15.00 dollars.
One is generic and the other one is not, but they are the same cream, we use generic.

Diaper Rash ?

 ECZEMA

DIAPER RASH

Does your child have severe diaper rash to the point of not wanting to sit down?

Did you know it could be eczema?  Yes that's right, simple to treat but hard to diagnose. So I'm here to
 help,
  my child has eczema! This causes raw skin, blisters, and so much pain for the children that they cringe and

cry and don't want to sit down and do not like to be touched to be cleaned! Nolan had a Paraprofessional at
school and she changed him and told me her daughter had had sores and rawness in the diaper area and

finally a doctor told her it was eczema. It took me a few months to get that it could be Nolan's problem. So I
took him to his Pediatrician  and said is this eczema? He said yes. That simple, years of horrible rawness and
sores. Being all this said the paraprofessionals daughter was "typical", her Mother had eczema and hence she
had it in the worst place. So I have decided that Nolan has it because of his rectum being cut and therefore

there are no oil glands to moisturize the skin when he expels the stool, therefore it is so strong it just burns the
skin, as it would any of us! 

Look at my cure for Eczema- Extreme Diaper Rash!

Humming Bird food

Never buy Humming bird food again !!!

Two cups water and one cup sugar, heat til sugar is dissolved...done! The humming birds love it.

Hirschprungs procedure

The procedure of Hirschsprung's disease  

The Doctors cut the colon that was dead (void of nerve cells) that was attached to the rectum. Then they reattached the colon that has nerve cells to the rectum. This remedies acute constipation, which is the problem. In our case, eight inches of dead intestine (colon). They reattach his colon to his rectum so that his colon is no longer void of nerve loss.

 However it takes a tremendous amount of time for Nolan (children) to learn to control their bowel muscles. But, It can be done! This is probably a little confusing if you have not experienced this. So let me say it this way, the colon that was reattached is no longer dead; however the rectum has been cut as well to accommodate the surgery, so now there is a different problem!

That is that, now the rectum is void of being able to contract when bowels need to expel. So there for we have the opposite problem, constant stool. Now Nolan has to do "mind over matter" to control his bowels, wow, this is a very daunting thought for a parent, knowing that there child already has severe mental challenges to overcome.

Potato box

Adding run on potato box

Put second run on potato box and added dirt...they are doing wonderful ...enjoy, hope some of you are doing this as well! Carla.

The Fun Stuff

Fun Stuff Coming...

I will be showing pictures and videos of "Raising Nolan" soon.


However I felt it very important to share our situation with the first part of our years with Nolan.


We feel that this has made us stronger and wiser.

Behavior of Down Syndrome

Misconceptions of Down Syndrome

 The Number One Misconception:

Down Syndrome people are "unteachable"

FALSE !

Remember:

Please help them!

 Do not think they are throw away children !

I can not express this enough !

The problem is that they are not given enough time to react !

They require a few more seconds or minutes to react to direction and chores !

Well worth the time and effort.

Remember they are not ignorant they are just slow in reacting!

Food passing through stomach

After food passes through the stomach

Nolan's Doctors had fixed his stomach so he could eat. Now he could not pass the food, (formula at the time), just little pieces of black tar looking stuff. So the Doctors decided that Nolan had Hirschprung's Disease which means his lower intestines attached to his rectum was void of nerves, (dead) not able to push his stool out.  Now this was the hardest surgery for me to endure, they informed me that they were going to go in and cut the lower eight inches of his intestines that attaches to his rectum! That would remove the dead part of his intestines and reattach the part that had nerve, (living cells) onto his rectum.

Now it wasn't that simple, unfortunately.

This procedure required Nolan to have a colostomy, that is a bag attached to his stomach to the upper part of his intestines that are good, above the bad that is being cut off, so that the stool goes into the bag. This is a very dangerous infection risk because the intestine is pulled out of the side of his stomach and put into a roll,if you will, and a sticky adhesive applies the bag to which his stool goes into. Now this is up to the Parents or care takers to keep clean. I have to tell you I thought I was prepared for Nolan to come out of surgery with his intestines routed out his stomach. 

Well they brought him to his room and I said I'm ready let me see it. I must tell you for the first time in my life I thought I was going to faint!

Medical Issues

A Common Medical Problem for Down Syndrome

Duodenal Atresia

Nolan had a Stomach surgery to fix his Duodenal atresia.

This is when the first part of the small intestines is either closed off or too narrow for food to pass 

through. In order for the incision to work the doctors put a feeding tube through his nose and down 

to his stomach. Now some feeding tubes go directly into the side of there stomach, fortunately that 

wasn't our case. After the incision is well enough for food to pass through the tube comes out and 

normal feeding begins.

Down Syndrome

We want to share our trial and errors of having a child with Down Syndrome



Raising Nolan

This is my take and opinion on certain issues of children with Disabilities.

My son had fifteen surgeries within three years of his life on earth.

This is just going to be case and point until I get more in depth later.

 Nolan was born at 3lbs and 11ozs. He was in NICU for five weeks but never had to be on oxygen, which was a miracle in and of its self.

Nolan was born with intestine problems and so began the surgeries.

It took a long week to week and a half for the test to come back to find out if he had Trisomy 13-18-21, two do not survive (typically) and 21 does. whoo hoo, Nolan was 21!

What that means is that he was born with an extra chromosome. This is what causes the almond eyes and the similarities in each other. In other words this is the reason Down Syndrome individuals resemble each other.

With that being said, the actions (in my opinion) of Down Syndrome are not the same and for this reason I am writing about the disability my son was born with.

This is my prelude to stating case and point of Me and My Families experiences with Nolan.

Nolan May 2014
7 YEARS OLD





No one has the right or permission to use or copy this content.

Potato box update

Will add a run of pre cut boards this weekend and some dirt to fill up to top of boards, stay tuned.